Wednesday, May 22, 2013


After two and a half years (which include one rejection and one hearing), my request for disability has been approved.

Whew! I knew the waiting and the family finances were both stressful, but I had no idea how drastic the effect of all that stress was until I got the good news yesterday and experienced a flood of ideas for my current work in progress. Now, if I can only get them all down in writing in the next week or so...

Friends and family have been incredibly supportive of me as I've gone through this process, and I am so grateful to all of them for their good wishes, prayers, advice, and kind words.

Now, I have some writing to do, and as most of you know, my ability to do that is limited; I'd better say goodbye and hop to.

If you would like to learn more about atypical myotonia congenita (otherwise known as acetazolamide-responsive myotonia), you can check out this older entry:

[Edit 12/12/2013: For some time now, but I don't know how long, the preferred name of my disorder has been atypical (or acetazolamide-responsive) paramyotonia congenita, so that is what I'll be calling it from now on.]