Tuesday, January 3, 2012

And More Good News This Evening

The January issue of Contemporary American Voices is out.

And who would have thought that when I finally started writing creative pieces about the myotonia, my first complaint would be about patients instead of doctors? Certainly not me!


  1. I wish it were as easy. A friend of mine is very keen that I should get my prostate checked. He just did and it's positive. But what about my bowels? And that liver spot that could be cancerous? (Irritatingly, I did get that one checked and is *is* precancerous, but as it's not killing me yet, no one will do anything.) And that ache that could be arthritis but probably isn't? After all, I have a friend who probably is arthritic but she dances and can't face the reality of joint failure, so she doesn't get a proper diagnosis, so she can't treat it properly. We're all nagged at all the time to get everything checked but when we do we are dismissed as the 'worried well'. As you were, Tracy, for all the years that you tried to get a proper diagnosis while doctors wondered why you were wasting their time. There are no answers. Being a typical British male, I just avoid doctors. And, as I've told him, my friend who is having his prostate treated can mock at my funeral.

    I knew a lovely lady whose continual moans about silly aches really began to get on my nerves. Eventually she collapsed and was admitted to hospital with bone cancer. She died a month or so later.

    Sorry this rambles but, as I say, it's a difficult area.

  2. It is a difficult area, but there are certainly some extreme examples that aren't hard to spot. For instance, before I was diagnosed, I was looking at lyme disease as a possibility. One guy just peppered the board with pictures of his poop as seen under a microscope. To most people, it looked as though he ate a large amount of tomatoes. But he insisted he was seeing writing worms, maybe even the lyme spirochetes themselves (not even possible without the right equipment).

    I completely understand that there is a vast hard-to-tell in the middle of the diagnostic spectrum. But there is also an extreme end called batshit crazy. Not that they can help it, but if they'd just find a way to take one step to the right or something, maybe the rest of us could be seen as we actually are.

  3. Oh! Sorry, I meant to also point out that I still very much hold the doctors responsible for their actions. I'll continue to say that the default position should be to believe the patient. But they do see more of those with facetitious disorders than most of us do, so I can see how they are at higher risk for cynicism as well.